During Celiac Disease Awareness Month, I created a series of images you can share during this month and throughout the year. I attend medical conferences, work with top non-profits and the best and largest gluten-free magazine in the country. And it’s scary – there is way too much misinformation out there about celiac disease, and I feel like it’s my job to correct it when I see it. It doesn’t make me the most loved person during this month, but it’s something I feel very strongly about.
This has to be one of the most frustrating parts of my job. Correcting misinformation from uneducated doctors and online “experts.” And telling people that the celiac blood test is just a screener. There are too many false positives and false negatives from the blood test alone to use as a diagnostic tool currently. It needs to be used as a screener. The gold standard is an endoscopy. Remember, both the blood test and an endoscopy need to be done while eating a gluten FULL diet for accuracy. Just the facts ma’am
Gluten-Free 101: Dining Out. Always ask about how foods are prepared – fryer, grill top, pan – ask them to be prepared separately and safely! With a fryer, make sure they have a dedicated gluten-free fryer!
People always say “but I don’t need a diagnosis” but they don’t sit through all the medical conferences I do with top doctors. They tell me stories of people that thought they were #celiac but actually had colitis, microscopic colitis, crohns disease, ulcerative colitis or IBS or something really crazy! So important to get diagnosed so a GI can monitor your health and see improvement. Also, get a bone density scan and nutritional deficiency panel! Also, having a diagnosed #autoimmune disease means you’re more apt to acquire other autoimmune diseases! So many reasons why to get diagnosed and proper follow up care.