My “real life” job is in market research. I constantly interview people about their daily lives and product usage so I can write reports to big clients on how to make new products, better products, and products that make our lives easier and better. So naturally, I’m a big fan of anyone participating in market research. I also feel the same about pharmaceutical research – although my symptoms typically make me unable to participate in most research studies (and it would be a breach of ethics if I participate in many studies in which I might work with the client). I would personal love to be able to participate in a study and find something that could potentially make our lives as a celiac better and easier.
At ICDS 2013, we were given an abstract book full of all of the research that’s new and upcoming about celiac disease. On page 75 of the abstract book, there is E 500 abstract about new treatments and it highlights Daniel Adelman’s research with ALV003. The conclusion states:
“The results demonstrate for the first time a non-dietary intervention that can attenuate gluten-induced small intestinal mucosal injury in the context of an everyday gluten-free diet in celiac disease patients.”
After ICDS, I was approached by the CeliAction team, the team that’s in charge of ALV003 that was presented in the abstract book. Now, I don’t know all of the in’s and out’s of the study, but you will learn if you sign on and see if you’re able to participate in the medical research study. I am not being compensated, nor do I “get anything” for passing this information along to you. I don’t have an affiliation with Alvine, and even if this drug passed, I don’t know if I myself would take it – I’d have to see what it’s all about. I’m just here to spread information about what’s new out in the world of celiac disease.
You can click on the photo above to access CeliAction Study to learn more about ALV003 (aka the CeliAction Study). This post was approved by the FDA.
I will not be able to answer any questions, but the team from the study will be monitoring this post to see if any of you have questions about this study. Please comment if you have questions, or contact the study directly.